Thursday, February 12, 2009
"I Need Thee"
My husband was first diagnosed back in 2001 with Stage 4 RCC. Within two days he had an emergency nephrectomy and for the next five years of continuous scans, ultrasounds and MRI's, we were always told that the cancer would not reappear.
My only regret now, is that I was not more frugal in searching everything I could get my hands on via the internet with regards to RCC during those five years. I must have been so naive to always take those test results so casually and most of all to always accept what the doctors always told my husband and I..."your cancer will NOT come back"!
Looking back now, it was just plain stupidity on my part...I didn't even know what an "oncologist" was during those five years....why? because we never were referred to one!!! Anyone of you who are affected by cancer and read that last statement, will most definitely shake their heads. Can't say that I blame you, so that's why I'm writing today's post.
Please ensure that if you have been diagnosed with cancer of any type, that you have been diagnosed by an oncologist who is experienced with cancer. Even more so, once your particular type of cancer has been identified, then you should "insist" that you be referred to a cancer specialist who practices most specifically in your type of cancer. These are the experts who know what's happening with regards to latest treatments and medical expertise. Some oncologists will look further to find more information on their patient's type of cancer, but just in case your present oncologist prefers not to, then by all means, take your health in your own hands and find that expert!
Wednesday, February 11, 2009
- Overview of Renal Cell Cancer
- Current Standard of Care
- New Treatment Approaches
- The Role of Clinical Trials
- Managing Side Effects and Pain
- Communicating with Your Health Care Team
- Questions for Our Panel of Experts
Pre-registration was required, but you may telephone 1-800-813-4673 to see if you can still participate.
This workshop is facilitated by www.cancercare.org and cancer patients can also access telephone support groups as well as online support, by contacting them. Various other workshops are scheduled in the upcoming months as well.
Monday, February 09, 2009
Saturday, February 07, 2009
Friday, February 06, 2009
Wednesday, February 04, 2009
I've found some very informative videos that are too long to download to this blog, but I'm going to include the link. They all originate from
The University of Texas M.D. Anderson Cancer Center
Once you access the website, go to the bottom of the page and open the window just above the words Back to Home and you will find several videos listed, particularly for RCC patients. One that I found to be of interest was
"Doctor What Do I Have To Do To Make Sure My Kidney Cancer Doesn't Return After Surgery"
Some of the terminology may be very difficult to understand for any novice like myself, but at least you will be able to gain additional knowledge and information from listening to Dr. Wood's presentation.
Remember that these videos all date back to 2008, almost one year. Not really a long time, but yet, just imagine what new discoveries and medical information has been updated in these past nine months. So, I would suggest that you would listen to the information as a guideline only.
The link to this website is
Trust yourself. You know more than you think you do.
Monday, February 02, 2009
I've discovered these 3-D video clips and thought I would share them with you. They may be especially informative for anyone who has not yet undergone a CT scan or MRI and will explain a little of the procedures involved for both.