As I look at the faces of other patients/caregivers I can instantly detect the fears and unknowns that they are dealing with. My husband and I are very comfortable to a point of being in that Clinic, but for those who are relatively new to those waiting rooms, it can certainly be a place that is filled with anxiety and nervous feelings. We always introduce ourselves to those around us and try our best to help lessen their uneasiness. All of the staff are so very helpful and comforting, but it does take a few visits to get to know them and feel more at ease.
Today, we know the you have to be "always" a step ahead! At my seminar earlier this week, I sat around a conference table with other oncologists, pharmacists, and directors. My being there shows that I know everything pretty much that they know about my husband's type of cancer. I'm no medical expert, but at least I know the realities of it, the options that are there for him and the test trial results of every available treatment that is out there. I know the most informed people to talk with whenever a medical issue arises and I know who to connect with if a uncertainty should arise. Most of all, I am informed!!!
- Google your type of cancer on the web and find sites that are national, state or provincial organizations
- Search for blogs written by cancer patients or caregivers for your type of cancer (I recently included a very good link in one of my posts to help find these blogs)
- Contact the top pharmaceutical companies and read more about recent treatments that are available for your type of cancer
- MOST OF ALL - find an oncologist who is a SPECIALIST in your type of cancer and be certain that he/she knows all about your present condition and is willing to discuss options with you, either in person or by telephone or via the web
Remember, if you have cancer, you are in one of the most informed eras to have it. There are so many contacts and so much information, that at times it can become mind boggling, but take your time and you can learn so many important things. You need to stay informed.
As the title of today's post reads: "As Long As They Call Your Name" you always need to keep searching!!!
Take care everyone!