Many times over these past months I have changed my persona from a meek and somewhat mild human being to a caregiver who realized I needed to establish my own task force, don the commando armour and become chief of whatever it takes to protect and serve my husband in his Cancer Battle.
It will consist of worry and sleepless nights as you try to diagnose the problems and think of the what-ifs, a cell phone constantly by your side for those times when you cannot be there, and staying close to home, if at all possible. You become the director of medical records as you record appointments, tests and results. You follow-up when someone else forgets to call you back and you ensure that medications are readily available when needed for stomach upset, headache, pain, or the slightest cough. You learn how to take blood pressures, temps and give needles. You learn about which meds go with what aches and pains and you constantly keep abreast of every new drug test, reports and whatever might be just around the corner in case the present treatment is not working. When asked numerous times how I've gotten through this myself, I always repeat this quote "This is a journey that I would never wish anyone to take, but one for which I have been very blessed to travel". That says it all, for every caregiver is more than willing to do whatever needs to be done.
Ruffling feathers is a "given" and when this happens, you don't let it bother you. Do what you think is right at the time and what is best for the patient. As caregiver, you will have to set out the perimeters and the "way it will be" for others to sometimes follow.
In our family for instance, we have always stuck to the battle cry that neither I nor anyone else
I trust that by reading this website, it will provide information to caregivers and encourage them through difficult times. It is important to note that as caregivers we also experience the seven emotions of